rare diseases

Update news rare diseases

A rare life: Man in Ninh Binh lives 50 years with 'tree man syndrome'

Confined to a wheelchair, a Vietnamese man with tree man syndrome shares his quiet, difficult journey.

Vietnam seeks solutions for 6 million rare disease patients amid drug shortages

The Ministry of Health has announced an action plan to improve rare disease management as treatment costs and access issues continue to burden patients.

MOH discusses solutions for expensive, scarce drugs for rare disease patients

In Vietnam, approximately 6 million people live with rare diseases, with 58 percent of cases occurring in children and 40 percent of rare diseases misdiagnosed as other conditions.

Vietnam’s rarest child inspires a nation with her smile

A rare genetic disorder transforms one Vietnamese family's life and inspires many.

10-hour face surgery restores young man’s smile and future

A complex 10-hour microsurgery has given a 22-year-old man from the mountains of Ky Son (Nghe An Province) a new face, a renewed spirit, and most importantly - a reason to smile again.

Dak Lak detects two Whitmore cases, launches urgent response

Two patients in Dak Lak have tested positive for the deadly “flesh-eating” Whitmore disease. Local health authorities are now mobilizing to prevent an outbreak.

Dragon worm infection re-emerges in Vietnam after decades

A 43-year-old man discovered a dragon worm parasite up to 70cm long in his leg after self-extracting it at home, prompting urgent medical attention.

13-year-old girl in Hanoi has C-shaped spine, bent 'like a dragon'

The curved spinal condition, called scoliosis, not only alters her physical appearance but also makes it difficult to stand, increases risks of falls, and affects internal organs, particularly the heart, lungs and abdomen.